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Last on 30 months ago
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Larry

What a wonderful day in the tbi neighborhood 43 months ago

Tell us about your experience with/connection to TBI

While not considered "officially" TBI, my wife Beth suffered an anoxic brain injury in 1990 that robbed her of memory and cognitive skills. Behavioral issues arose as well. After years of living with brain injury, developing strategies to overcome certain facets of daily life and a lot of research, we...

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  • Lynnette

    Have you read the book "Against Medical Advice"? By James Patterson/Hal Friedman. (Patterson the novelist and Friedman is the Dad). I am reading it now and it is great. It's about a young man that develpos Tourette's Syndrome, and the fight to get the Medical community to see it as a medical/brain issue, rather than psych.  I'm just really getting into it and thought you might like it.                     Lynnette

    30 months ago

  • MICHELLE

    Hello Beth and Larry!

    Larry, thanks for the educational comment you left on my posting!  The filtered or unfiltered way to handle it is awesome!  What a blessing to receive your advice!!!  I am so glad to have found this site!  Everyone is so kind and knows exactly what this is and how hard it is to deal with!  Recently, I got brave and introduced "Jeff" to my children!  They liked him a lot and thought he was so cool!  This was hard for me on so many levels because the guy I was dating died in my car accident!  I also never intended to start a relationship in rehab.  He actually met my ex-husband and it went very well!  I just wanted to say thanks for all the comments and advice ~ it is so appriciated!  Michelle in Michigan!!!

    31 months ago

  • Heidi

    Thank you for the sweet comment! My next task.....weight loss.  If I can come back from my TBI, I can lose my weight.  :)  God Bless!

    34 months ago

  • Tina

    Nice to meet ya Larry. I have met a good bit of folks since I've discovered the T.B.I. sites. Everyone I've met has different stories; but, one thing definitely in common and that is their amazing strength to overcome adversity and come up on the other side fighting with vengence to get control again. And no matter what obstacle is thrown in their paths they just hike up their skirts or trousers and keep on truckin'!! That is darn inspiring to me.((~: Good wishes to you and your wife.

    34 months ago

  • Moonprayer

    Thanks Larry! I will send him there for info.

    35 months ago

  • Sandra

    Hi! I'm in Arkansas too. My son however, was injured in Missouri and we were blessed with being in a fantastic hospital with treatments that far exceed what I have worked with in the Memphis area (where I worked for a long time in health care.) As a health care worker, I am amazed at the lack of education regarding TBI. I now work in Arkansas at a local hospital and I can recognize a TBI patient and understand their behaviors. Often times, people misunderstand folks with TBIs as being "combative" or "obnoxious," "violent and rude." When in actuality if the nurse would take a deeper history, she might put two and two together! Anyway, we need more education in our health system! Oh, and "camping out in ICU.." my my I will never forget! It really was "camping out." As for the military, I agree.. who can "fully recover" in three months? That's ludicrous!

    36 months ago

  • Annette

    How do you deal with the changes, emotionally and mentally??? I just have a really hard time some times dealing with the differences.

    38 months ago

  • Madeleine

    hi Larry and Beth,

    Back from a cruise on the Ruby Princess ship.  Had a great time but never too long, time passes soo fast mjuch too fast. 

    My dizzies were not as bad as the last time i was on one; great for that but the lights... did bother me a bit;;; not enough to make me run all over e.... hahahhaha

    How are you s, hope things are fine

    have a nice day

    Madeleine

    38 months ago

  • wendell

    hello nice to meet you

    38 months ago

  • Larry

    Thanks Candy. Boy - do I understand camping out in the ICU waiting room!!! You're absolutely right about brain injury being portrayed so differently on TV. Of course, it is such a misunderstood condition everywhere, even in the medical community.

    I read a report a couple of days ago from the chief of Neurosurgery at Elmendorf Air Force Base that said the vast majority of soldiers suffering from TBI fully recovered in 3 to 6 months. That's certainly not the brain injury I'm familliar with.

    Have you ever seen the movie, The Lookout. It presents brain injury accurately. The language is very, very salty and I would not want to watch it with children, but it's a really good movie. We have a short trailer on our site if you'd like to see it. Click here for the movie trailer for The Lookout.

    Hopefully - all of us together can change attitudes by getting accurate information out among the general public. Beth and I have recently sent information to the Arkansas TBI Task Force of our legislature and hope to work with them to spread the word here in Arkansas.

    38 months ago