Are You Understood?

Poll Started March 11, 2009 by Valerie Chavez

On a scale of 1-5, how well do you think people understand you and what you're going through?

Are You Understood?

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  • Sandee

    I"m very specific to the people in my life about what I'm going through.

    35 months ago

  • James

    out of the hundreds of friends i used to have one does my best friend and my parents do so thats 3 out of a hundred

    35 months ago

  • david reid

    35 months ago

  • Bonnie

      Trying to explain to a person who came into your life 4 yrs. after the ABI what your gouing through is hard. He just doesn't get it. Although he has tried.

      I am lucky I still pretty much have the same friends just minus a few. Proving to me they wern't good friends to begin with.

    35 months ago

  • david reid

    It is hard to look one way on the outside and be processing another way on the inside. I process slower and it takes more time for me to work on projects. I think as I am growing older I have learned to self-contain and control the environments I place myself in. Communication, for us, is a journey of emotions and finding that calm place within to make sense out of what we are trying to process.

    I have used the skills of learning script or watching the reactions of others to gauge mine. It just takes more awareness.

    TBI and head-injuries are odd things, the packaging sometimes doesn't match. The inside vs. the outside appearacnce. So, sometimes scilence is the best reponce - just say less.

    Most people, just don't connect to what you live with on a daily bases.

    35 months ago

  • Jenette

    First I want to stat off by saying I am glad I am who I am and I am proud of having a brain injury.  Blah I am having a hard time trying to say what I mean.... Truthfully if somebody asked me "If you could turn back time and change the fact that your accident happened, would you?"  W/out hesitation I'd say yes...Now don't get me wrong the wreck was poopy BUT I got thru it.  I DIDN'T do anything....well I physically did BUT all my strength and will came from My Lord and Savior Jesus Christ!!  As a Christian, God calls me to spread the story of His son.  I feel honored to have had my accident and be able to talk about it.  I get to show all God's Glory thru it =) That being said I had to make it clear I don't regret my accident.  I often get frustrated because there are ppl that do not understand me and my brain injury.  Like what exactly it is and how it effects me and my life.  

    I have never had a problem standing up in front of ppl.  I don't get embaressed.  Since the Brain Injury I have a lot of word recall issues where words do not come to me fast enough or correctly.  I was at work helping a guest and I was trying to explain something.   It was taking me a little while and she was getting frustrated and annoyed at the situation.  She blurted out "Geeze are you drunk or something... you can't even put a sentence together"  So I had to sit there and try to explain to her I had a tbi but I was so "taken aback" by the comment I was having a hard time putting the words together.  Finally she just stormed off and talked to my manager.  Thats when it gets annoying.  Sometimes I wish ppl were more understanding.  It's ok tho...It will eventually get better.

    35 months ago

  • Michelle

    I like to believe that the people in my life get it. After all it's been 11 years next week. Yet there are times that they seem to forget that I do not process  information as the "normal" person. Nor am I able to always communicate  / respond  in a timely manner. I myself don't understand all of the time.. How can I (at times) seem on top of it  and then all of a sudden .....NOTHING,,,. How can I exspect anyonre to fully understand me when there are times when I don't even understand myself?

    35 months ago

  • Moonprayer

    No one understands me anymore. They don't understand what I'm going through. Most think I'm either faking it or am a whole lot better than I am.

    35 months ago

  • penny

    Im not understood my family dont get it

    34 months ago

  • Resilient

    People outside of TBI pretty much don't get me, but I'm finding those who have compassionate and non-judgmental hearts, they are flexible and fluid in their thinking - they get more than others. 

    It is those places I feel more relaxed, among those folks as well as among other TBIers, I don't have to burn my brain bucks retelling my story.  Talk about stress! 

    Could I have understood this path without judgement had I not met TBI by 'accident' (car accidents, that is!)?  Probably not. 

    Those who have hearts for people, they will learn on their own.  As long as I can focus on healing and spirituality, people not getting me doesn't sting so much.

    34 months ago

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