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Leslie Jones updated her profile.()
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Leslie
graduating in august 32 months ago
Tell us about your experience with/connection to TBI
“i had a cavernous hemangioma on my brainstem that bled three times - in dec. 1989, april 1993, and nov. 1998. i was 8, 11, and 17 at the time and i don't remember them all too well today. i've had three brain surgeries to repair the hemangioma and have resulting...”
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AngelaHi. How's it going?
20 months ago -

AngelaIt was nice to meet you tonight at the BIAT meeting!! Hope to see you again!!
30 months ago -

LynnetteThank you for being a friend. I hope to offer support to the survivors of TBIs, but you will also teach me a great deal that may in turn help the others that I care for as a nurse. I look forward to knowing you better. Peace and love..Lynnette
34 months ago -

BarbaraHi Leslie...sorry I haven't stayed in touch. My body went into tolerance withdrawal with the Valium I am on and I have been working closely with my primary, shrink, and psychologist to taper what I had hoped would be off, then a break, then begin to taper from the Klonopin. I'm down to 8.5mg a day of Valium; 2mg-2mg-2mg-2.5mg and will stay at this dose for at least a month. It has been absolutely horrible going through withdrawal....and despite holding the dose at 8.5mg a day the w/d sx continue. Just fyi, you might want to google "The Ashton Manual"; Dr. Ashton is located in the UK and is the international expert on benzos and people who unwittingly through trusting their physicians have become dependent/addicted. Also there is a support site called..."benzobuddies". I am also on 1mg of Klonopin four times a day....did not know that 1mg of Klonopin=20mg of Valium. The physical symptoms of w/d are the least of my concerns...it is the ones that affect the psyche that are close to driving me over the edge...and like I say just because you taper/decrease/or succeed in getting off the damn benzos...it is a long journey back. I am profoundly discouraged, non-functional right now...and just trying to hold on.

If I had only known what I do now about benzos, I would never have taken them or let them be prescribed for me! Have to go lie down....How are you? As I said, I am non-functional right now and haven't been answering emails, etc...just dumping them off my server and saving those that I need to for a later date. I hope things are well with you.
hugs, Barb
39 months ago -

LeahThanks. I have a big test coming up on the 3rd of Nov. and then a neuro appt on the 17th so maybe some more ansers after that. hope all is well with you. keep in touch.
39 months ago -

AdamJust got back from the punkin patch with the kiddos and gina's kiddos.It's doing alright,still stressful everday living but,I get by:-)How are you doin?
39 months ago -

AngelaThat's me--lost. I need to be found.
39 months ago -

AngelaI guess okay. I'm just doing what I always do, which is a lot of thinking.
39 months ago -

Leahwell i recently found out i have high pressure in my head through a spinal so I had an MRI today and I see the Dr. on friday and I have no clue right now what exactly they are going to do about it. I guess the good thing is at least I know and something will be done. I surprisingly am having a good day today with very little headache or tingling in my face. I should knock on wood so it doesn't all the sudden attack. how have you been?
40 months ago -

AdamWell it is very very crazy but I only come to town maybe 2 days a week.I'm banning myself from town/public places after 6:00pm lol Yeah I seen ya on there and thank you much.My time is spent there pretty much all the time.I need a life lol
41 months ago

Josh(ua